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Re: really struggling

thank you @Tay100 @Janine-RO @WheresMySquishy

I had one appointment today and it didn't go very well at all. makes me just want to hide away from the world. Ive lost quite a lot of hope that what I went there for would get better but it wont and has been classed as permanent and theres nothing that anyone can do now to fix it.

I had my blood test done yesterday and my arm is still bruised and sore. I only have one good vein they can draw from sadly so the same arm never gets a break so im guessing its becoming sensitive more now.
I have 2 tests tomorrow starting at 630am (have to be here about 6.15am though) to start the process of ruling out if I have cancer or something else that's sinister. im not sure how ill go with an mri considering they need a vein and my good one is to sore to use now! it took them 3 goes to get a vein last time.
then another test on Tuesday but that's more time consuming then anything. then make another appt with the specialist to get all the results possibly next Friday. im on a waitlist for a hospital day surgery test but with covid atm what would usually be a 2 week wait is now a 6-8 week wait. im top priority though so hopefully that should rush things along a little.

@WheresMySquishy I really hope your tests come back ok. im really glad you have someone to go with you too, I wish I had someone to come with me, anyone that comes with me is paid sadly.
**NEVER be afraid to ask for help because you're WORTH it!**
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Re: really struggling

@scared01  I'm sorry that the appointment didn't go well. Smiley Sad I'm so sad for you that it's going to be permanent. What are they doing in terms of managing the symptoms and providing supports?
Ouch! The blood test sounds painful. I had one this week as well. Like you, I also have difficult veins and they usually can only use one, but it is thin. Sometimes, that vein collapses too, so they have to either find a deeper and more painful one or move the needle. Sometimes, I become lightheaded while trying to help them do it and fifty people end up surrounding me and elevating my legs. When I was in hospital, it took them three different attempts to properly insert a cannula and get IV antibiotics working and I ended up with lots of bruising as well. Luckily, another anaesthesiologist got it right the first time the month after.
We have found that when they use a butterfly needle (it looks like it has wings/handles on it and has a tube), I don't have these problems and I don't experience bruising or much pain. Unfortunately, the pathology place and hospital I've been going to for years don't do that, but luckily I found another place that did that when we asked them to. They've also told me to drink lots of water beforehand to try to prevent the problems.
The tests sound exhausting! I don't like early morning tests. It's bad that you have to wait so long for the day surgery one too. Because I am a private patient, I usually don't have to wait long for procedures. I know some public patients who have really suffered with long waiting times for the same surgeries I've had. I feel sorry for everyone who has to wait.
I'm so sorry that no one can come with you. Smiley Sad I think that social support is really important when you're going through something like this and you deserve to have someone by your side. No one should have to go through an experience like that alone.
I haven't seen the results of the tests yet, but I was told by the GP's receptionist that they found a few things so I have to come in and discuss it at the end of next week. I have a family history of some of the things they tested for and I thought one of my levels was going to be a bit worse than when they tested previously, so I'm not all that surprised or worried. It doesn't sound urgent.

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Re: really struggling

@WheresMySquishy when I spoke with the oral surgeon about the damage that's been done, apparently nothing can be done. nothing to try and heal it and nothing to manage the symptoms. the way it is now is the way itll basically be for life. its too late for another surgery to correct it. there aren't any supports. its basically just left me very hopeless now.

they cant use a butterfly needle for me. the only vein they can use is one of the deeper ones. there is literally blue spot (id say just big enough to insert a needle) that shows up so its really difficult for them too. i also have to be laying down for any needles, i have passed out twice before and it happens very quickly so i just make sure im laying down any time now.

good luck with your test results, i hope that whatever is showing isn't to serious and that it can be managed quickly and easily.
**NEVER be afraid to ask for help because you're WORTH it!**
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Re: really struggling

Wow, @scared01 that must have been so upsetting. Smiley Sad It's always really disheartening when doctors don't seem to express much hope or offer any kind of solution. I really don't know what else to say, that's really bad news. I hope it doesn't end up affecting your life too much. Heart

That sounds so painful! Have they ever tried anything like using a device to look at your veins? My sister also has trouble with blood tests and I think they used it once. Unfortunately, she has a needle phobia and chronic pain so it is quite an ordeal for her. Once they gave her something like a sedative beforehand but it made her act really strangely afterwards and we all got worried, but luckily she was fine after the effects wore off.
I think laying down is a good strategy. I tend to get some 'warning' signs before I faint that tends to alert me and other people when it is about to happen, so that's good at least because it allows me to lie down or be seated.
I hope so too! They did a bunch of different ones, so it's hard to guess which ones are significant. I hope everything goes well with your tests.

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Re: really struggling

thanks @WheresMySquishy :Heart:

no they haven't looked at them, I think I just take after my nan. she had bloody awful veins too.
I also have a needle phobia as well so it doesn't help at all. I think if im stressed even when im really hydrated they collapse further in and makes it even harder to find.

for me when I faint, I literally sit and then get dizzy think im going to throw up and within a few seconds I pass out. its very quick and often doesn't leave any time for anyone to react.
**NEVER be afraid to ask for help because you're WORTH it!**
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Re: really struggling

Hi @scared01 

dangggg I hope the test next week is ok, and I'm sorry that covid makes things all the more uncertain for you. I have tricky veins too, so you aren't alone there!

 

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Re: really struggling

Aw @scared01 Smiley Sad, I'm really sorry to hear about the negative medical news. I hope your tests this morning went okay and that you receive some better news going forward. Our bodies can be so awful to us at times...

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Re: really struggling

thank you @Tay100 @Maddy-RO
I think the stress is starting to get to me more now. I can feel the depression side of things creeping in more rapidly and for no particular reason. its sooo tiring but I have a day or 2 break while mum and her partner aren't working and my caree is away for 2 days so I can rest more and have some space to myself
thank you for caring Heart
**NEVER be afraid to ask for help because you're WORTH it!**
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Re: really struggling

Hello @scared01, I am sorry to hear that you have been feeling stressed lately. It must be difficult feeling unsure about what has been causing you to feel more stressed out. Is there something that you do when you are feeling stressed that helps you to feel a bit better? It sounds like you have a great chance coming up soon to get some rest and relax. Do you have anything planned for these two days, or are you more planning on just enjoying the time off? Heart
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Re: really struggling

hi @Sophia-RO
I haven't met you yet, are you new here?

I don't really have any plans, just go where the day takes me I guess. it sounds silly but when im not working, the lonliness creeps in. I don't have any friends to catch up with, no where really to go or be, not really close with any family and the ones I do see I see all the time so its not really anything special (and they are just parents and siblings anyway). so I literally just sit at home with no one to talk to and nothing to do except housework. sad really isn't it.
**NEVER be afraid to ask for help because you're WORTH it!**