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Re: Friday 3rd May: Live guest Bart from Livewire

@Bart-Livewirethat's so true! My sister received hardly any support from her school and felt abandoned by her friends during her illness and when she was in hospital. In some of the hospitals she went to, there was hardly anyone she could talk to who would understand what she was going through and were around her age. It was very isolating for her.

I agree with the importance of staying in touch with a friend with a chronic illness!

Re: Friday 3rd May: Live guest Bart from Livewire

@Bart-Livewire  That's sad to hear people experiencing a lack of support from school friends - but very true what you've said about it being hard to understand things you haven't been through yourself.  

Your suggestion to keep asking lots of questions, and being curious is so important. If we don't understand what someone is going through, trying  to understand is a huge part of showing we care. 

I've always felt in friendships, that just showing up  - is like 90% of the whole thing. People who keep showing up after weeks, months and years mean the world!

You said it perfectly: 

"The best thing you can do is not let go of a friendship and try to understand what your friend is going through. It doesn't take much to make a huge impact, and those simple connections can make a huge difference for a young persons wellbeing and mental health."

 

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I'm leaving ReachOut on the 5th of June Smiley Sad Say goodbye here

Re: Friday 3rd May: Live guest Bart from Livewire

@Bart-Livewire  The projects sound really fun!

Re: Friday 3rd May: Live guest Bart from Livewire

@Bart-Livewire  Those activities sound great! Such a variety too.

 It reminds me of a thread we have called

where people suggest distraction / coping ideas! 
This brings me to another part of your career, and work... music! 
Music can be such an amazing coping strategy, and distraction! 
What's the link for you between music, and your work with sick young people?

For others chatting - do you find music helpful , and if so what kind of music is your go to for getting through a tough day? 
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I'm leaving ReachOut on the 5th of June Smiley Sad Say goodbye here

Re: Friday 3rd May: Live guest Bart from Livewire

@WheresMySquishy We try to get around to see everyone in hospital, even those that can't really communicate. We try to find things to do to be able to interact with everyone. I find music is fantastic for this. I have a load of music apps that do all sorts of different things with sound.

Re: Friday 3rd May: Live guest Bart from Livewire

@gina-RO  My twin has a chronic illness that has a lot of both physical and cognitive symptoms, and because it's a fairly invisible one sometimes people don't always keep that in mind Smiley Sad Beyond just offering practical support for things that might aggravate her physical symptoms, I always try to make sure that i'm always checking in and conscious of how her illness affects her day to day life, because people can really belittle how hard she has to fight to do things they might take for granted Smiley Sad

@WheresMySquishy those are really lovely ways of showing your sister support Heart I know my sister was really isolated too, she couldn't really attend school at all for almost a year and friends were checking in less and less as time went on. I agree with @gina-RO there, what @Bart-Livewire said sums it up perfectly. Being there ongoing is so key Heart

Re: Friday 3rd May: Live guest Bart from Livewire

@gina-RO  I like to listen to upbeat music when I'm in a bad mood because it cheers me up. My sister likes to sing to take her mind off her symptoms.

Re: Friday 3rd May: Live guest Bart from Livewire

@Bart-Livewire that's a really interesting intersection between your different careers! Music really is so good at connecting people, it transcends language! Smiley Very Happy

Re: Friday 3rd May: Live guest Bart from Livewire

@WheresMySquishy  Upbeat music makes a lot of sense for when you're feeling low. That's awesome your sister likes to sing as a distraction Heart

 

@ecla34  thank you for sharing that about your twin sister's experience - you sound like an amazing support for her. Heart Having an invisible illness can be so challenging - especially when people are belittling of the very real pains and difficulties of that illness.  Heart

 

 

 

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I'm leaving ReachOut on the 5th of June Smiley Sad Say goodbye here

Re: Friday 3rd May: Live guest Bart from Livewire

Thanks for the question @gina-RO . I had a long career as a music producer, but the last 7 years I owned a company where we wrote music for ads, tv and film. Funnily enough, I actually did some sound design for a Reach Out video about 10 years ago Smiley Happy But the work on ads became meaningless, while at the same time we realised our son had mild autism. I became really interested in Autism and child and adolescent development and decided I needed to change my career. A friend was a nurse at the hospital and was in a meeting with Starlight about starting Livewire in hospital and though it would be perfect for me...She was right. That was 2012 and since then I've used a lot of music with patients in the hospital. We made an album over about 3 years, which you can hear on Livewire.org Smiley Happy