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Re: TW desperately need help, running out of options

@Tiny_leaf  I'm sorry what? Smiley Indifferent Smiley Surprised Smiley Mad
That makes me so mad. Sounds like very poor bedside manner to me. And here I thought my sister's hospital was bad with their post discharge care and support, but at least they've been staying in touch with us and asking how we've been coping with her being at home for the month.
Did they at least give you a discharge summary with any recommendations for follow up care?
Did they say anything about outpatient treatment?

These people seem to do some advocacy and provide some support services for FND but I haven't contacted them myself, so I don't know what they're like. They also have a list of people who specialise in treating FND by state.

Perhaps you could write a negative review of the hospital online. Someone might respond with contact details for making a complaint.

Re: TW desperately need help, running out of options

@WheresMySquishy 

 

Right; I was discharged at the same time you had like 50 separate things happening so you wouldn't of read that story!

Basically what happened (a shorter version of a previous post):

 

"They'd already officially discharged me before I'd even been told, [...]

I asked if they could at least keep me long enough for me to contact an advocate. They said I'd already been discharged and it was too late.

I was crying on the floor curled up in a ball shivering and one of the nurses came up to me, crouched down on floor and was like "Tiny-leaf, that's not appropriate behavior. Come get your stuff." "

 

So yeah... so much for them treating my depression...

 

 

"Did they at least give you a discharge summary with any recommendations for follow up care?
Did they say anything about outpatient treatment?"

Nope!! Literally it was like:

"Here's a list of phone numbers to treat your conversation disorder."

"I've already got a neurologist for my functional neurological disorder. I need help with the depression with psychotic features."

"We've already said we don't think you have depression."

"And what do I do if I'm not safe then? Can I call you if I feel like my life is at risk and I'm not safe at home?"

"No, if that happens you follow the process and go to the emergency department."

 

I've somehow come across a physio who's made a competent treatment plan for the FND, but I have no one giving me treatment for my much worse mental illnesses....

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Re: TW desperately need help, running out of options

Aaaaand the KHL queue is full.

Re: TW desperately need help, running out of options

All of this sounds terrible @Tiny_leaf, with the hospital stuff, I can't even begin to imagine how frustrating it must be.

Not being able to contact khl either, yikes.

 

How are you doing at the moment?

Safe?

Re: TW desperately need help, running out of options

@Pasta yeah, I'm safe.

Not doing great at the moment though.

Plus after a few relatively pain free days my entire body hates me. Especially my knees..

Though without it being like that I probably would've completely dissociated by now.

Re: TW desperately need help, running out of options

@Tiny_leaf good to hear you're safe. Have you tried khl again?

Hope you are feeling better soon and are able to get some rest. 🙂

Re: TW desperately need help, running out of options

@Pasta I haven't really been bothered honestly....

Re: TW desperately need help, running out of options

@Tiny_leaf that's fine, I often feel that way aha.

Re: TW desperately need help, running out of options

@Pasta how about you, how're you doing?

Re: TW desperately need help, running out of options

@Tiny_leaf I really do want to say I'm fine right now but I honestly don't know. Right now I'm questioning if there's anything "wrong" with me. Part of me really wants to be diagnosed by a professional to see if in fact something is wrong. The other part is telling me that nothing is wrong, I don't need to see anyone about this. I don't know if it's a way of avoiding everything, talking about. I also don't want to be miss-diagnosed or put on medication, reasons why I'm not pursuing to see anyone about it.