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Re: Too much

Ahhh @Tiny_leaf  that is awesome news! So happy to hear it

 

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Re: Too much

@Janine-RO hehe.. I love Mr Turtle. He's very cute.

 

There's a waiting list, but at least I'm on it.

After my interview thing with their main psychologist he apparently decided he liked me and wanted to help, so I had him on my side. Apparently once he'd made his mind up the decision was pretty much made for everyone else.

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Re: Too much

@Tiny_leaf  I'm so glad that they want to help you! I'm so happy for you right now. Smiley Happy
Any idea how long the waiting list is?

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Re: Too much

@WheresMySquishy about three months, though hopefully shorter.. 

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Re: Too much

@Tiny_leaf  I hope it ends up being shortened and doesn't extend. Smiley Happy

My sister's hospital wants her to be able to do more physical activity before she gets readmitted. She has physios but they can only come once a week. So I found a rehab provider with physios and OTs that specialise in neurological conditions (I think they're called neurophysiotherapists) and have treated FND before. They had a big meeting about her (she was given high priority) and are coming to our house to do a two hour assessment on Thursday. Then they will decide whether they can do anything for her. They're expensive but I hope they can do some more physio with her and that the hospital will agree to it. Her physios are happy to work with them, but some physios don't like getting other physios involved.
Luckily, the process to contact them, send her medical history and get an assessment took less than a week.
Have you had any experience with similar kinds of providers?

Re: Too much

@WheresMySquishy yep! That's a neurophysio. I see one as an outpatient, since my FND isn't so bad compared to some others (especially  now since I don't need to walk so much now that we're all meant to stay in) though I keep getting annoying tremors.

The one I have is pretty nice, but because it's through an outpatient service I don't get to see him much, I mostly did hydrotherapy when the pool was still open.

 

It's definitely good that they've helped with FND before, I had a physio who hadn't and he made things a lot worse... 

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Re: Too much

@Tiny_leaf  I'm sorry you've had a bad experience with a dodgy physio in the past. Smiley Sad I'm glad the one you're seeing now is helping you. Smiley Happy I hope you continue to get better!
My sister mostly did hydrotherapy before she got the non-epileptic seizures, but I don't think any of the physios she has seen are neurophysios. The ones at the hospital had some training in how to treat clients with FND but I don't think they specialised in neurological conditions. I think the outpatient hospital one made her a lot worse.
I think the neurophysios can see her in our house, which is good because I think their clinic may be a bit far for her to travel. We've had experiences in the past where people say they can help but don't make any progress with her, but I hope these physios will be more helpful because they have experience in it.

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Re: Too much

@WheresMySquishy right, seizures can kinda be an issue when you're in the water..

I hope everything goes well!!

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Re: Too much

My brain is not working so well atm. Don't feel good.

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Re: Too much

Hey @Tiny_leaf brains can be like that Smiley Sad How are you feeling this morning? 

 

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