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laying it all out

my left wrist is really bad (and I just so happen to be left handed, which makes it really difficult to actually rest it) so that's a pain in the butt. For a really long time now (since at least the start of the year) I have had a tight chest. And it is horrible. Not only that, to go along with the sometimes unbearable chest tightness, I feel almost constantly tired, lethargic even. I went to the doctor to try and fix the chest stuff, discovered I had almost no vitamin something so I had some injections but they have had no effect, (i haven't gone back to check my recent results, so I don't know if it's actually changed but I haven't felt any different). I've been out of uni for one and a half months now (so uni stress is gone (of sorts, because my timetable sucks)) and still nothing.
Plus, I feel zero motivation to get better. To exercise, to get up... plus plus I've been feeling really restless at nighttime now and it's not been very pleasant.

N1ghtW1ng
N1ghtW1ngPosted 10-07-2017 09:30 PM

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Ben-RO
Ben-ROPosted 11-07-2017 05:18 PM

Hey @N1ghtW1ng i'm sorry that you're having so much physical stuff at the moment and that the doctors aren't providing many answers. How're you feeling about it all at the moment? How can we help? Is it problem solving time or do we just need to listen at the moment?

 
 
N1ghtW1ng
N1ghtW1ngPosted 12-07-2017 10:39 AM
It's all too much @Ben-RO. My wrist has been terrible these past few days (or even weeks), probably the cold. My ear is stuffed again, it feels like someone is squeezing the inside of my chest. Deep breathing seems to have the opposite effect... I've almost stopped believing that it'll get better. I don't know what I need, to be honest. I do want someone to listen and more than anything to understand how much work I put in every day just to get up and get through the day because I feel like no one really gets how hard it is, how much pressure it feels like.
I think, I'm going to make a list of things I need to do during the day and then use RO as my... um, checker? 😛 words are hard
It probably won't work, but I don't really know. I like lists, but I can never seem to finish them off. I need a push of sorts, to make sure I actually do the things on my list (I even bought lollypops, lollipops? to reward myself) What do you think?
 
 
 
Ben-RO
Ben-ROPosted 12-07-2017 11:11 AM

Oh i like that idea a lot @N1ghtW1ng a commitment thread... thing would be really cool! 

 

Kind of like what i'm doing today. But maybe for like...goals? 

 

When you breath deep are you breathing with your belly or your chest muscles? 

 

I can certainly see how hard you're working. And interestingly at least from my angle, you seem to be doing really well despite how damn hard it is to be doing well at the moment. 

 
 
 
 
N1ghtW1ng
N1ghtW1ngPosted 12-07-2017 11:44 AM
Yeah, I think a commitment thread would be good for me. I'm not very good at making sure I do things 😛

I try to breathe with my belly, but then it gets really hard for me. Almost like there's something in my chest that sucks all the air away, so that when I'm breathing deeply I breathe in less and less until I have to take a really big breath to get it all back. does that make any sense? Kind of like my lungs are a balloon with a little hole in it and every time I take a breath, it fills up but some of it escapes through the hole until there's almost nothing left and I have to take a really big breath to get it back up to a regular size.

Thank you for understanding. It just feels like my parents don't understand exactly how hard it is. They know stuff is off and hard, but they don't know how hard it feels (or at least, I feel like they don't)

As soon as I finish my room, it's onto the list!
 
 
 
 
 
SmileMonkey
SmileMonkeyPosted 12-07-2017 12:16 PM

Hey @N1ghtW1ng

It can be incredibly hard living with a chronic condition, especially one that is taking so much of your energy.. You should be proud of how much you've been able to achieve despite this. Your commitment thread sounds like an awesome idea!

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