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Life Update

@WheresMySquishy it feels like ages since I last "spoke" to you.

How're you going?

Tiny_leaf
Tiny_leafPosted 22-11-2019 06:39 PM

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Tiny_leaf
Tiny_leafPosted 24-11-2019 06:40 PM

@WheresMySquishy I hope so too.. even if it doesn't fix everything, I imagine getting it managed better would still be really useful.

 

Ugh that sounds horrible....

Carers really need better supports... The health system and NDIS seems to treat relatives like employees for cost reasons, which is kinda screwed. Smiley Frustrated

At least employees get sick leave and lunch breaks!

 

That's... kinda weird.. Like even over the counter ones..? 


I hope you get in too, I think you'd be good at it!

 

Yes, it's very annoying. I've had at least one occasion of "is this my normal pain or is my knee out of place?" (it was my knee. I know this mostly because it noisily and painfully snapped back into place a few hours after)

It also means that they get into a horrible feedback loop. Like thanks to FND I couldn't use my legs. Because I couldn't use or fully feel my legs, I had to drag myself to the toilet and back. Because my joints bend in weird ways, I ended up bending my leg back to far while doing that, pulling a muscle. And because of the few days of extra pain, my FND went wild. Smiley Indifferent

 

I hope so....

I honestly feel like we need to get my pain under control before I start working on strengthening, because focusing on strength first just made everything worse..


I'm going to get one of these guys:

Related image

(betta/ Siamese fighting fish)

They're really cute, I love them. 

People keep putting them in tiny vases and boxes though Smiley Sad

I'm definitely getting him a proper tank with enough hiding places.

I'm working on a way to get multiple layers of different depths for planting, it's so much fun!!

 
 
 
 
 
Maddy-RO
Maddy-ROPosted 23-11-2019 02:15 PM

Hey @WheresMySquishy 

 

That sounds really hard. You are showing extreme strength and resilience throughout all of this. Applying for clinical masters while going through all of this, in itself, is a huge achievement. You should be very proud of yourself. Smiley HappyHeart

 

I really hope your sister is okay. It must've been hard to hear the FND specialist, the person who is "meant" to have all the answers, say "we're screwed." As a patient, or a relative of a patient, it's not really what you want to hear, is it? I'm glad the doctor is hopeful and remaining optimistic though Heart. I hope everything works out. My thoughts are with you and your family during this stressful time. Heart Hopefully psychological treatment will improve things for your sister. Heart Hey, if you get into clinical masters, maybe you can teach her some coping strategies??? Provide some counselling? (Joking - I know that's unethical). 

 

Thinking of you and wishing you all the best with your applications. Heart

 

 

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