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Hey @Tiny_leaf, sorry to hear that your rheumatology appointment didn't go to well. I can hear the frustration in your writing regarding not being understood. It must get old and tiring. I can understand why you would be more understood by those who are classified as having disabilities. 

Here are some potential support groups that you can check out and research.

https://waindividualisedservices.org.au/peer-to-peer-support-groups/

https://connectgroups.org.au/directory/categories/disability?tab=listings&p=3&category=45&zoom=15&is...

https://www.disabilitysupportguide.com.au/services/support-groups

I hope you find something through these links.