Who rated this post
- Mark as New
- Bookmark
- Subscribe
- Mute
- Subscribe to RSS Feed
- Permalink
- Report Inappropriate Content
@Tiny_leaf I'm so glad that thread was helpful! Not many people know about FND so there needs to be more awareness of it. We didn't even know what it was or what it meant when my sister was first diagnosed with it. I work in a hospital now and not one staff member seems to have heard of it.
@Hozzles Waiting for a diagnosis can be so hard, especially when it's a diagnosis that is mainly reached by excluding other things or when tests don't show anything. At least in some cases, such as with FND, nothing being found can be a good thing because it could mean that there is a possibility that someone can get better rather than it being some kind of degenerative or progressive illness.
It's frustrating that you're not seeing the neurologist again in four months. Waiting times for specialists seem like they're ridiculously long at the moment. 😞 But I hope that they will be able to provide a helpful interpretation of your scan and offer you a way forward.
@xXLexi_Lou122Xx I've got syncope as well. We think in my case it is vasovagal in nature, although I'm just waiting for my GP to call any minute now so we can discuss my test results further. I had an ECG and Holter monitor, but I didn't have any events/episodes during them and the results were essentially normal. Luckily for me, there are some 'warning signs' that I'm about to faint and I can lie flat with my legs up which helps prevent me losing consciousness. And there are certain things that make it more likely to happen. My last episode was a few days ago and my family gave me some starchy foods and Hydralyte afterwards.
My sister's psychiatrist, who specialises in FND, wrote some helpful explanations of syncope in one of her books. My sister has dissociative seizures, but they're different from my fainting.