Friday 3rd May: Live guest Bart from Livewire
INFOBUS is back! May 2019...
On Friday the 3rd of May 7-9pm we will be having an Infobus! If this is your first time hearing about an infobus, go here to learn about what they are!
Our guest will be Bart from Livewire.
Livewire is an online place for teens living with a serious or chronic illness to share stories, laugh, have a vent.. And go somewhere where they will be understood.
Bart will be chatting all things chronic illness, how to get support and how to cope with the daily struggle illness can bring.
If you have any questions for Bart submit them below, and we will ask Bart on the day ( depending on how many we get!)
Getting really excited for our chat with Bart this Friday!
A bit about Bart:
I'd love to be able to make it, and I'm sorry that I can't! However, I'm really keen to read over the chat afterwards!! 🙂
Thanks everyone. My stomach is killing me for about a week now. Digestive upsets for what seems like no reason. Hopefully it goes away soon because it is really impacting my mood and work.
I have heard of Starlight but not livewire. It sounds like a really good organisation.
Who's keen?
@mspaceK @xXLexi_Lou122Xx @Bananatime04 @Tiny_leaf @scared01 @Anonymous @Saltwaterdreamtime
Happy Friday everyone!!
We are about to start this month's Infobus - in 10 minutes we will be chatting to @Bart-Livewire !
Get your questions about chronic illness, music (Bart is also a music producer!!), and online support ready!!
Just tagging a few people who are online: @Cheeseburger @mspaceK @WheresMySquishy @indieinsanus - no pressure, but would love to chat 🙂
Just a reminder to everyone, that if anything comes tonight that you want to get extra support on, you can always contact Kids Helpline on 1800 55 1800, or Lifeline on 13 11 14.
Hey @Bart-Livewire - welcome to the RO forums and to tonights infobus!
Thank you so much for coming on and chatting to us about yourself and your work with Livewire tonight!
Hey @mspaceK ! How are you doing tonight?
Let's get stuck into it!
We had a heap of great questions come through the google form this week that we will try to get through tonight , but if anyone wants to ask a question live, jump right in!
Maybe we could start with you telling us a bit about what you do on a regular day at work @Bart-Livewire ?
i really love the idea of everyone being able to play games in real time together
i hope you feel a bit better @mspaceK
Our chats are totally run by members. The chat room is open from midday to midnight and the chat host is just there to make sure everything runs well. I try to encourage the members to run as much as possible.
Hey @WheresMySquishy !
Oh awesome - what a good initiative to use the live streaming for people online.
The meeting of both IRL and online in one space !
We had a great question come through related to this :
What kind of impact do you think online communities have for teens living with serious and chronic illness? Do they help people stay connected when they might be unable to attend school etc?
What kind of impact do you think online communities have for teens living with serious and chronic illness? Do they help people stay connected when they might be unable to attend school etc?
Online communities are life savers for certain people. Although everyone takes something positive from the site. We have members with social issues who can't really connect or make conversation when they join, and a year later they are practically running Livewire with us. We have oncology patients who can connect with other oncology patients and generally its a great space to talk about procedures and things that other friends don't understand. The community is really important for members who are in the country also.
